Standardising UK Trusted Research Environments in the Open
Dr Christian Cole
Health Informatics Centre, University of Dundee
The Need for SATRE
Our Approach
Lessons Learned
The Need for TREs
- Huge potential benefits
- Enabling researchers to work with sensitive data
- Enforcing and encouraging good security
- Keeping the confidence of data controllers, subjects and the public
The Current TRE Landscape
- Fragmented
- Diverse approaches
- Narrow focus
- No TRE standard
A Standard Architecture
- Define a TRE baseline
- Co-created by the community
- Supports accreditation
- Move towards interoperability
The Need for SATRE
Our Approach
Lessons Learned
Diverse Collaboration
Working in the Open
Contribution Governance
- Consensus through discussion and feedback
- Code of conduct to enforce community standards
- Clear consensus mechanism
- Open to contributions from anyone
Collaborative Work
- Collaboration Cafés, coworking, work package meetings
- Synchronous events help focus and reach agreement
- Can directly support community involvement
- Asynchronous work respects time
- We do both
Community Co-creation
- Enabled by working in the open
- Support and recognise other contribution routes
- Team members translate non-GitHub contributions to Markdown
- Contributions all end up on GitHub and the site
Stakeholder Focus
strategic stakeholders |
builders and operators |
users |
influential organisations |
make or run TREs |
work in TREs |
set requirements |
technical and process experts |
focus on productivity |
direct engagement |
collaboration cafés, GitHub |
user testing sessions |
Public Engagement
- TREs rely on trust
- Two public members
- Public engagement sessions
- Influenced specification and processes
Leading by Example
- Follow our own rules
- Evaluating our implementations
- Commitment to bridge the gap
Sustainability
- Standard needs to live on
- Laying the groundwork
- Dedicated time needed for stewardship
- Seeking future funding and community support
- Using the standard is contributing
The Need for SATRE
Our Approach
Lessons Learned
The Benefits of Working in the Open
- Better engagement
- Transparency and trust
- Governance doesn't have to be perfect
- Recognising contributions
Get Feedback Early
- Avoid wasted effort
- 105 survey responses from 55 organisations
- Could have been more effective
- Take advantage of version control and open working
- Changes are more frequent but take less time
The Power of Collaboration Cafés
- The best way to get community input
- Led directly to significant changes
- Preparation, promotion, processing
- Facilitators are necessary
Effective Engagement Takes Effort
- Provide scope and context
- Make good use of people's time
- Be flexible and accommodating
- Lead by example
- Value roles like PIE Professionals, Community Managers, Application Managers
Public Involvement Matters
- Bring knowledge and perspectives you may lack
- Helps communicate your message
- Public as valued, core team members ensure voice is heard
- Recruiting the public is challenging
Reflections
- Need for standardisation
- Community consensus is critical
- It takes effort to engage the community
We encourage others to adopt these processes whenever community involvement is important
Acknowledgements
This work is funded by UKRI Grant MC_PC_23008
as part of Phase 1 of the DARE UK programme, delivered in partnership with HDR UK and ADR UK
Also supported by the Ecosystem Leadership Award under EPSRC Grant EP/X03870X/1
and The Alan Turing Institute
Everyone who has contributed